Why Wolfpack

Wolfpack represents a defining period of my life. This blog is about everything from now on. I keep a journal as well

Saturday, August 19, 2017

This is a Facebook post from one of the groups I belong to. It is for Glioblastoma patients and care givers. A few years ago a father of a young cancer patient that died not from the brain tumor but from the treatment. For some reason some people think the government are hiding cures for diseases because big pharm will lose money. Total crap I know but these people are on the fringes and they are given credibility. Here is my response.

We in the brain tumor community know that each cancer is as unique as the fingerprints on your hand. What is good for one patient is usually ineffective for others. This gentleman's story has been floating around for a long time. At best it is anecdotal evidence. Rest assured that the government does not hide cures for cancer. I've been a care giver for over 5 years for my wife. Stage 4 GBM in left temporal lobe. Standard protocol of surgery, radiation and Temodar. The tumor returned after 2 years. More radiation and 10 infusions of Avastin and Carbo-platin. She had a mild stroke probably due to the side effects of the chemo; her blood pressure went crazy. She also had a second stent placed in her heart along the way. It has been 3 years since any tumor was detected by MRI. No chemo for 3 years also. There is one word that we never use in the brain tumor world, 2 actually; Cured and Remission. With GBM that is the reality. You live with it. It's the new normal.

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